New drug for rare disease wins approval, a “comfort” for family too late to benefit – CBS News
CBS News |
New drug for rare disease wins approval, a “comfort” for family too late to benefit
CBS News “The days are long, but the years are short.” That’s how Jennifer and Tracy VanHoutan, the parents of Noah and Laine and Emily, describe what it’s like to have a child with Batten disease, a rare and devastating neurological condition that took their … FDA approves Brineura for type of Batten disease FDA action buoys Memphis family battling brain disease BioMarin’s Brineura Gets FDA Approval As First Treatment For Type Of Batten Disease |
View original article
Author:
Powered by WPeMatico
Health Topic Contributor
Editors and curators bringing you the latest and most impactful health news. Truly objective, we print links to stories and studies that may contradict one another. If you're searching for news on health studies, alternative health modalities, facts on modern allopathic medicine, and more, we're you're team bringing you the stories and facts that matter.